10월 24일 (토)
|Virtual run/walk, location of your choice
Fun-Run-Walk October 2020
It's finally here: the first ever virtual global fun run/walk event to support Shwachman-Diamond Syndrome (SDS) research! www.SDSAlliance.org/steps
시간 및 장소
2020년 10월 24일 오전 7:00 GMT-4 – 2020년 11월 01일 오후 11:00 GMT-5
Virtual run/walk, location of your choice
이벤트 소개
It's finally here: the first ever virtual global fun run/walk event to support Shwachman-Diamond Syndrome (SDS) research!
Special event T-shirts available Until October 4th, 2020.
With this fundraising campaign, we are raising funds to accelerate therapy and cure development for Shwachman-Diamond Syndrome, a rare genetic cancer predisposition disorder that affects thousands of children and adults world wide.
Shwachman-Diamond Syndrome Alliance's mission is to accelerate therapy development and a cure for SDS - in particular to eliminate the deadly leukemia risk in SDS - in a time frame that matters to our children and thousands of SDS patients world wide. Our focus is research and development: we raise funds for the most cutting edge research, build collaborations globally, and invest into critical research tools and infrastructure, now.
One million steps is certainly too much for any single person. But together, the steps add up. We can get there!
Questions / Comments?
Details at www.SDSAlliance.org/steps
Contact us at the SDS Alliance: connect@sdsalliance.org or +1-617-329-1838